LIFE OF JANISH
Every child deserves to lead a happy and fulfilling life. Unfortunately, my son Janish was denied even the basic rights to a normal life as he was born with SMA Type I – a Rare Genetic Disease – There is no treatment available in INDIA , the only treatment is in the USA at a humongous cost of $2.1million (16Crores INR) – unable to afford even for those in the upper echelons of society. A frail beginning On 20 th February 2020 , my wife and I were blessed with a darling baby boy whom we fondly named Janish . Because of the pandemic situation, we elected to follow up with Dr. Sreelakshmi a pediatrician close to home. Soon we noticed that our son was unable to gain head control like other infants. Thereafter, Janish continued to grow gaining little or no muscle control. He never was able to sit up or stand. Even when Janish was 6 months old, we still had to carry him around like an infant. As an infant, he never kicked his hands and legs o...